UPDATE-Avery is coming home with a deep suction tube for her machine.FINALLY, Praise the Lord!- They pumped her with IV fluids to try to help thin the secretions. ....This maybe shouldn't be talked about but she also has, and patients like her have, bodily function troubles. Although they were working, wasn't enough movement. X-Ray showed she had a place in her intestine that was like impaction. They say even though there is an impaction, some can still get through, because she had BM's everyday. Mom will be home with her the next three days. Thanks for prayers and I'm sorry I didn't up-date you sooner, kinda had my hands full-Toogie....Cuties, our girl has problems and had to go to the ER and then was admitted. The Dr. doesn't think it is anything to do with the surgery on the 21st. She has really been doing well.I had her Tuesday and she was fine, laughing as usual, her old self. Yesterday about 11 am she started choking on her saliva. I tended to her and she was ok. Then about 3 pm,she was excreting more than she could handle, bibs were soaked,etc. and I had to keep the hand suction pump and her right by me. I called mom after the 3pm episode. I told her it happened earlier but then she was ok and seemed to be ok again. Mom wanted to see if someone else could see the rest of her patients and I told her no, she already missed work from Avery's surgery. If things got more than I could handle I would call 911- WELL, about 5pm right before mom arrived, Avery started choking and i tried the hand pump, I couldn't get it with that and I had a paper towel in my hand. I had to literally pull her clear plhem or saliva out, it was so thick. No reason she was choking! Well, mom & pops to her to ER and now in hospital for observation. She was worn out after the last episode and to be honest I was glad when they left for the ER. My husband said, she never laughed yesterday and she was very quiet, not herself at all. Mom sent me a photo of her screaming and crying in ER like now in pain. I cried then....Just keep her in thoughts and prayers today. This has been a scary time. ...I only have Nora today and she is still sleeping. I should be too, as Ashley and I text all though the night. Mason went to Nora's grandparents, after they got home from church last night, they came here. Sorry to give you bad news, she was doing so well, but I know Cuties have 'adopted' her and I know you'd want to know. -Toogie

Thank u for update what a scary sitiuation for your family i can not imagine what you have been thru but the Lord keep his hand over you all keep up your strenght

Toogie -- how scary for all of you. I hope they find what's going on. Lovely Avery has been through so much. Our prayers are with you.

Thanks for the update, Toogie...glad she is doing better!

Thank you for the update, Toogie. I'm happy that Avery is coming back home and pray for her, you and the whole family.
Hugs, Lidia

She will be much happier at home, will continue to keep all of you in my heart and thoughts. Marian

I am so sorry she has to go through so much pain an discomfort,
I am happy she has some good results in the end.
God bless you all.
Hugs Pam

Glad Avery is doing so much better that she cane come home. She is still in our prayers.

I'm praying Toogie/Lillian

I hope this additional solution will help a great deal so she doesn't have to feel scared! Glad she's home and still praying and especially for Mom's job and finances.

I'm so glad to get you edit of news today...Home is where she wants to be and such a relief to get answers and move forward. Still praying for each one of you and that you get restful, renewing sleep.

This is so sad. May you all become well again. Our dear Lord will see to that!

Toogie, My prayers for Avery and the rest of your family. --Sharon

What a blessing you are to your family! Always there. Always caring. Always loving. And most importantly, Always Praying! May you find a little comfort knowing so many others are praying with you for your beautiful family.

I pry everything goes well.
B

We have adopted Avery, Toogie! So sorry she is having these difficulties, and I know it is so hard on her and all of you! Praying for her to be well soon, and back to normal, and strength for everyone caring for her.
Hugs, Angel

Sending prayers for little Avery.

Prayers she is better today. God Bless you all.

This is a scary thing to happen to both you and Avery. She is in the right place to find the cause of this set back, hope it will be fixed soon so Avery can return to her usual self. Look after yourself. Marian

Hope Avery improve soon sending prayers .. Linda

Oh Toogie I hope Avery starts to improve quickly ,take care of yourself too

I read everyone's comments and don't know what I can add except that I am praying for your family too.

Toogie, first time I've been on computer today. So sorry to read your post. will certainly be praying for that little girl...and her family. Praying her laughter returns quickly. Hugs to you.

Oh how awful for all of you! She will have extra prayers this PM. Bless all of you.

Hugs to all the family.

Thank God you are aware of what to do in an emergency with Avery Toogie. I know you can do this, but oh! how scary and of course for Avery she must be so frightened when this happens. I do pray that they can alleviate her phlegm/mucus issue and she can once again be the happy little girl we have come to love. Prayers for you too and the rest of the family. God be with you all. Love Chris

1 comment

by pennifold 07 Aug 2015

12.53 Saturday 8th August, so glad to read the update on Avery. God be with you all. Love Chris

Toogie, I'm so sorry to hear this. Avery is certainly a Cutie and adopted by us all. My heart and my prayers will continue for Avery, her family and for you. Please keep us updated on how she is doing. Please try to get some rest. You need it more than ever.

Thank you for telling us. She's always in my prayers, but sometimes we need to just fluff them up a little. I pray that the reason is found quickly, it's something that can be remedied and that precious child doesn't have to suffer.

1 comment

by jrob 07 Aug 2015

Thank you Lord for answered prayers.

Oh My heart goes out to you too.. Prayers are with you and the family. Hope Avery is OK. and just a minor set back. Keep us informed. Suzanne

Praying for you all to get answers and heal and feel better.

how heart wrenching for you all Toogie. I pray that she does the same thing in hospital so they can see & make her better. prayers for you all. ~& a big hug for you~

Dear Toogie, what a terrifying experience for you. I so hope Avery is better soon. Hugs Sarah

Toogie, Avery and all of your family is in my prayers. Hopefully she will recovery rapidly from this setback. So sorry to hear of this. Hugs, Mary

Oh Toogie, I,m so sorry! I join others cuties to send prayers for Avery and for you too.
Big hugs, Céline

Oh Toogie, how scary!! I am sending my prayers to sweet Avery, to her parents and especially sending prayers your way for you and your Hubby. Bless her heart - I hope all is sorted out and she is feeling better. Take care Dear!! Hugs, Laura*

toogie, Avery and everyone near and dear to you and her are in my prayers for success. Get some rest if you can.

Toogie, so sorry to hear about Avery, I sure hope she will be fine and back to herself real soon. My prayers and thoughts are with you and all the family.

Oh, Toogie, am so sorry to hear of this set back....prayers will continue

Toogie, you and yours are dear as that what Lord spoke to my heart. As I read your post here out flowed tears and know these tears are for intercessory prayer.

First, go sleep any time Nora gives you the chance and try to rest some of the time that she is up. You are not a 25 year old mom, with endless energy for babies! Second, I am praying for Avery and current crisis.

Toogie. Avery is dear to my heart. I pray that the doctors will find the reason for the latest issues she has. I pray that she will recover from it fast.

Toogie; I am keeping Avery, you, and your family in my prayers. You are such a wonderful grandmother to Avery and mother to your daughter. Try to get some rest. Hugs, Sharon

Oh, Toogie...so hoping this will pass for little Avery and she will be felling better...I will keep you all in my thoughts and prayers...