Cuties, for a while now Avery has been having problems with digesting her Ensure. It has worsen to the point that she throws everything up. Mom called crying at 5:30 am, she is at wits end, unsure what happens next. Today, please think of her and say a prayer or two. Mom is stressed dealing with buying a home on top of Averys daily needs, working only part time because of this, etc. I just felt the need to tell you because so many of you keep up with Avery. I am taking my husband to the eye dr again. We left the girls at my house waiting to call the dr to see if she can bring Avery in. If so, she will drop Nora at the sitter. I offered to bring her with us. I have to come back and go to my route...I really need to think about retiring....EDIT-Of course the GI doctor that Avery has BEEN seeing and NEEDS to see, can't see her until May 15th. We are just back, my husband and I from the eye doctor, but I am leaving shortly to go back to work,and he just left with the girls to see Avery's pediatrician. We will see what she recommends....You know its a good thing my husband fell last week, as he is one hard-headed man, that won't go to doctors. Dr. checked him today and said 'legally' he should not even be driving without glasses. Can see right now,a lot better with glasses,so the cataract surgery can wait awhile. If he wouldn't have fallen, we would not have known, even though I have been telling him his driving is scarring me!-I will let you know if there is a change. I did give Avery 4 ounces of Ensure (half of a can) before they left, so I hope she will hold it down and digest it. The other day I gave her 2 oz about every 3 hours and she seemed to tolerate/digest it better. That is not much for a 9 year old girl......

Praying for sweet Avery & her entire family. What a heart wrenching time for her precious Grandma.
"little ones to Him belong.... they are weak but He is strong"!
{hugs}
Cindy

Your special little girls and family are always in our hearts, hope things gets better soon. Hugs and Kisses for them all. Marian

Likely has already been thought about or tried but just in case... like you were already trying, give a couple ounces at a time and see if you can do that every 30 minutes if it is not tolerated then every hour and keep stretching it out until she is able to handle the feeding. If she is still not really tolerating the feeding, even when stretching it out, then has she been tested to see if she may be allergic to something in the ensure. Can a different supplement be tried, maybe a rice milk base? Just start with small amounts to make sure it is tolerated and no allergies. Continued prayers to help guide both family and doctors in knowing just what this sweet spirit needs. Huge hugs to your whole family! Pam

1 comment

by toogie 30 Apr 2015

Thanks but she has been taking Ensure for a few years now. If you read the edit I posted, we have decreased amounts,and she is just not digesting. We can't give it more frequently because its not being digested/broke down.That is the main problem.Digesting. Yesterday she was able to 'digest' 4 ozs every 4 hours. When she throws up,drs afraid she will aspirate into the lungs. The surgery dr 'talks' about doing will keep her from aspirating, but I don't know what suppose to help her digest. It just sits in her stomach, doesn't break down. ...Thanks for the hugs and prayers.

life is being very difficult for your family right now,Im praying for better times and loads of strength

I am sorry things are going back to back for you at the moment, it is hard times, I Pray for an answer and better times.
Hugs Pam.

Toogie, I am so sorry Avery is having such a time with the Ensure. Maybe pedicure would be better for her. A doctor who cannot fit in one of his established patients who is having a problem like this is not right. I would call again and ask them to fit her in sometime. Tell them you will come and wait all day, if necessary, but she needs to see the doctor NOW. She isn't the typical child seeing the GI doctor. She has special needs and the doc would want to see her. it's okay to be more assertive for our kids. I know this is difficult. Hugs for Avery <3

4 comments

by hightechgrammy 30 Apr 2015

Moms of special kids are known to be Grizzly Bears and barracudas! And we are proud of it!

by hightechgrammy 30 Apr 2015

One day I decided to find a dentist who would treat Ben and give him anesthesia to get his teeth so we were absolutely sure he wouldn't have any pain in his mouth. I decided I was a "Mom on a Mission." I was so determined I actually found the perfect dentist for him that we actually had an appointment the next Monday. It was one of my better mom moments - LOL

by toogie 30 Apr 2015

Good for you, gotta go to work but I'll be back.

by toogie 30 Apr 2015

Unfortunately, a lot of things are 'just not right' and with health care it is getting worse. The pediatrician's office said, they have been getting complaints about this Ped GI drs office they referred patients to. Pediatrician said since they know what the GI dr wants done she will just contact a surgeon to do it, since the PedGI DR wouldn't be doing the surgery anyway. They first contacted the orginial surgeon that did Avery's GI button. He now won't see her. Don't know why, health insurance or special needs? So Ped office trying someone else....This GI DR that Avery's been seeing, visits/travels places to see patients. My daughter even told the office she would drive WHEREVER he was that day, if they would just see her. They wouldn't. I told my daughter to mark him off our list. Trouble is everything has to be approved and so you wait...I fear peoples health will no longer matter, especially the elderly or disabled/special needs.

Will pray hugs

I hope you can find answers to help Avery. It is so hard when our GC struggle. Hugs and prayers

You are all in my thoughts and prayers, Toogie...hoping Avery will improve much more...glad your Hubby got new glasses, too!

Toogie, you are all in my prayers/Lillian

Dear Toogie, my heart aches for you and all your family. I can only imagine what fears are going through her Mother's mind. I do pray that Avery can keep down her Ensure long enough for her to get the nutrients her little body needs. You are all fighters and I know God is holding you all in the palm of His hands. God bless you all and prayers being sent from 'downunder'. Love Chris

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Avery, you and all your family are in my prayers. I do hope the Dr. can solve her problem of not keeping things down. It is certainly a difficult situation. Let us know how she makes out. Hugs, Mary

You know my heart grieves for Avery, her mom and everyone else in the family. Avery is a Cutie and you know we are sending prayers for her and the family as we type. And yes, Toogie, that includes you. Please give us updates on her and hugs to her mom from us and for you too.

God bless that sweet angel! I'll be praying for her.

Sending prayers your way for dear sweet Avery and your husband. Keep us updated when you have time. Hugs and prayers, Lynn

Thanks for the post. Prayers for avery that she is OK.

may God comfort your family and beautifull little girl and keep them save

I pray that everyone gets better. :)

Prayers for each of you for comfprt,strength, peace and healing.

Keeping you all in my daily prayers. Try not too worry too much, it is all in God's Hands.The Dr.s will know just what to do for her to help. ~hugs~

1 comment

by toogie 28 Apr 2015

Thanks Loralye. Coming back from the eye dr , I listened to a song. He knows our needs before we speak and we need to lay them 'at the feet of God'. It is hard to watch her not be able to eat/digest her food, she is so underweight, it does break my hear

This must be so worrying for you all. My thoughts are with you dear Toogie. Hugs Sarah

Toogie cyber hugs and positive thoughts coming your way

Sweet Avery, your daughter and her family and You are in my prayers. Please please keep us in formed how Avery is doing. Wish I was there to help you all out! Hugs, Laura*

Stopping right now & praying for that sweet little girl & her family. As well as you!

Of course I will think of her and the whole family to whom it means lots of worries. I hope everything gets at least a bit better. Take care of you all.
Prayers send.

Poor Avery and the family that worries about her well being. I will pray for all.

I will be praying for all of you..

1 comment

by toogie 28 Apr 2015

We appreciate your prayers and concerns.

So sorry, Toogie, that many issues are bogging you and your family down at the moment. Seems like problems come in threes and fours, not ones!! That makes any situation tougher to cope with. Often, we feel like we cannot get through the stress, but most everything resolves in time, and life becomes settled again. My prayers are going out for all of you.
Hugs, Angel

1 comment

by toogie 28 Apr 2015

I do know that and we also know God is with us every step of every mile, just hard watching her not getting the nourishment she needs. We feel so helpless and seems she has to be hungry, too....