by parkermom 18 Jan 2018

I am going to whine a bit, so I'm sorry in advance. Since I've been retired to try to regain my health, I only manage to even turn my machine on about once every week or so. I've been diagnosed with chronic daily migraine, which worsens with movement, and then neuropathy in my legs. I really thought that I would get better, but it's been almost two years and I'm not any better. I'd appreciate your prayers for the grace to come to terms with my status. I struggle with my having to be still, and feel like I'm elderly and feeble. Thank you.


by hightechgrammy 21 Jan 2018

Oh Jennifer, I feel sad for you and the battle you are fighting. I have several health challenges too. None of mine are life threatening, but they are life changing. I have learned to try to manage it all, to make all the challenges as controlled as possible. Your migraines sound just too painful. I've heard that neuropathy in the legs can be just unbearable. I admire you for trying so hard to have a better life. One day when I was walking, I was focusing on what all ached, and what wasn't right with my body. I was thinking that other people are probably thinking I am defined by being "that poor person who is sick." But, truly, we aren't defined by our challenges, we are defined by how we manage our challenges. Prayers for you, and love. Jan

hightechgrammy by hightechgrammy 21 Jan 2018

OH, I wanted to add that doing some light aqua aerobic movement in our neighborhood indoor pool makes both my conditions better, but also gives my spirits a lift.

parkermom by parkermom 22 Jan 2018

thank you. I know exercise would help me, but it would also make the headaches worse. I did splurge on a home treadmill to try. I'm learning to manage and try to not feel guilty about not being as active as most people my age (I'm 55)

by gerryvb 21 Jan 2018

I'm sorry to read this, I hope and pray your health will become better, by medicines or by a cure. Try not to worry about others who judge you, they don't feel what you feel. You know what you are going through, good thing your Husband and family support you. Prayers and hugs are coming your way. And if it helps, just whine, Cuties here do understand.

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parkermom by parkermom 21 Jan 2018

Thank you. I posted this message in a moment of weakness, and have really been lifted up by cuties here. It means a great deal to me.

by jrob Moderator 20 Jan 2018

I am so sorry that you have to deal with this. I've found that almost everyone has some type of battle that they do, whether it is seen or unseen by others. It has taught me not to judge by what I can only see. I'm adding my prayers to the other cuties for you to have more good days than bad and more happiness than sadness. We are here for you.

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parkermom by parkermom 21 Jan 2018

thank you so much for your kind words. I need to be more aware that others are fighting battles of their own, some more obvious than me, others hidden.

by jofrog2000 20 Jan 2018

I am so sorry you are having such a hard time. My daughter has gotten migraines for years. You've probably heard it before, but she cut out all dairy products and that does seem to help a bit. My RA is not as debilitating as you are suffering. Sending up a prayer for you.

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parkermom by parkermom 20 Jan 2018

Thank you. I've tried everything. The combination of meds that I take now seems to be the best for me but I sure don't like taking pain meds. I wasn't the jogging, loving exercise type before this, but I was able to do and go when unwanted without thinking about the after effects. Now I have to learn to go slow and do or not do certain things. Thank you

by kustomkuddle 19 Jan 2018

I feel for you. I too had to "retire" from a job that I loved for health reasons 5 years ago (wow, it doesn't seem that long). I still have not been able to return and probably never will. Like you, the more active I am, the worse the symptoms. The Lord, in His wisdom, had other things planned for me - Primarily in caring for family that I would not have otherwise been able to do. I am sure that He has things planned for you as well. I know that it is hard not being able to do the things you would prefer to do. May His grace and love surround you. Sending prayers and hugs.

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parkermom by parkermom 20 Jan 2018

Thank you so much. It is harder to accept the changes in lifestyle than it is actually have the slower lifestyle. Your words have helped me. It doesn't take movement to pray for others and myself.

by 02kar Moderator 19 Jan 2018

You have my sympathy. It is so hard to have an invisible condition that most people cannot understand. Your life is changed and your quality of life has slipped. But it sounds like you have a supportive hubby so kudos to him. You may have to live a slower life, but you are not old or feeble. And you still care and pray. So my prayers are added to your and all of the many prayers our Cute sisters are sending up for you. And no apologies needed. So many of us at Cute can understand to vent, whine and cry. We are right there with you hugging you.

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parkermom by parkermom 20 Jan 2018

Thank you so much for your kind and helpful words. On cute, i feel validated and that helps me.

by graceandham 19 Jan 2018

That's a lot on your plate - whine all you need to. I will pray with my sweet sisters for relief and grace. Sending you a PM.

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parkermom by parkermom 19 Jan 2018

Thank you. It's difficult to manage sometimes because I don't look sick. My husband can tell when it's bad, of course, and the rest of my family. But I feel that invisible judgement from others when I can't keep up or go out.

by sdrise 19 Jan 2018

Prayers are coming your way!

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parkermom by parkermom 19 Jan 2018

Thank you. Most days are okay, but slow. Some days, especially in the winter, are really tough

by momac 19 Jan 2018

Hugs and prayers. From Maureen

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parkermom by parkermom 19 Jan 2018

Thank you. It always touches me to be able to come to Cute.

by shirley124 19 Jan 2018

Hugs and prayers.

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parkermom by parkermom 19 Jan 2018

Thank you. I'm grateful for the Cute community

by rescuer Moderator 18 Jan 2018

Migraine headaches are the worst! They make it hard to read, eat, sit, sleep... I do hope you have considered seeing another doctor for relief. It seems a long time for you to go without improvement. I am sure it seems like an eternity to you.
Prayers for your healing

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parkermom by parkermom 19 Jan 2018

I get Botox shots (70 each time!) every three months, and take several different medications--some to treat it, some to try to prevent it. If I have an active day, it seems that the day after and sometimes longer are worse.

by basketkase 18 Jan 2018

So sorry to hear about your diagnoses...I too suffer from chronic migraines...I understand your frustration at having to come to terms with this debilitating condition. I will pray that life will get better for you and that your pain will ease....God bless...

parkermom by parkermom 19 Jan 2018

Thank you. It's difficult for my family sometimes because I just can't do and go like I want.

basketkase by basketkase 20 Jan 2018

I think that is the worst part for me as well, no one can understand the pain and debilitation that goes along with migraines...I used to get quilt trips having them so often, but have finally decided to listen to my body and do what I need to do to help will get better, Jennifer, I promise..

by dragonflyer 18 Jan 2018

So sad to hear this, Jennifer...I hope and pray that you get some relief...stay strong...

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parkermom by parkermom 19 Jan 2018

Thank you. Most of the time I think I'm a tough old bird, and I can handle it. But sometimes it really gets to me.

by pennifold 18 Jan 2018

Oh! Jennifer, I'm so sorry to read this and you're 10 years younger than me, I see. I do so pray that your migraines will cease and that the neuropathy in your legs will be completely healed. Have you tried every avenue of assistance to help you alleviate these conditions? Love Chris

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parkermom by parkermom 19 Jan 2018

I see what seems to be an assortment of doctors--pain specialist, endocrinologist, family doctor, etc. I've come to understand that the main focus now is to manage, not cure. It's very frustrating. My mother had migraines until menopause, and then they stopped. I'm also postmenopausal, and they haven't stopped.

by crafter2243 Moderator 18 Jan 2018

Oh dear. I can not imagine having chronic migraine. You could use prayers for sure. I will do my part. Hugs for you.

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parkermom by parkermom 19 Jan 2018

Thank you. Most days I can manage, but cold windy days make it the worst.