So many of you have prayed for my grandchildren. My sister has a new grandaughter and today she called and they found out that she has a very rare genetic disorder...there is no treatment...and there are so very many problems that she is likely to have. I am asking for prayers for the baby and the family. This will be a life long affliction. But I saw with my own eyes what your prayers can do and am asking you to please lift them up. My sister's daughter is in shock and totally withdrawn right now. I ask that you pray that the Lord will heal her baby girl miraculously as it will take a miracle. Thanks so much. Becky

Prayers go to you and the family! Suzanne

May 2, 2013 -- My prayers for you and your family -- be strong and know that God is there.

Praying right now for one of our Lord's merciful miracles! Our prayers do make a difference; i have lived to see it! I am holding them both up for God's healing intervention... AND for His strength for all of you at this time. God Bless and keep you all in the palms of His hands.

Praying for healing hands to land on this precious child and comfort for the family as they prepare for a different kind of life than they first anticipated. (It may be different in that they spend the rest of their lives proclaiming the miracle) ;)

2 comments

by bmupton 02 May 2013

Thank you so much.....

by drro 02 May 2013

Amen to your idea in ( ) !!

Dear Becky, every child is precious in His sight and I will certainly pray that your sister's new grand-daughter will have all the love and support that every child deserves. Love and blessings Chris

1 comment

by bmupton 02 May 2013

Thank you.

Yes, Becky, I will pray for this child and mother and father and for the grandmother, you, all the family. For healing or the grace and strength to face what comes. Our friend Wendell has Cerebral Palsy and has never walked or been able to do for himself; his sweet cousin wrote an autobiography of him entitled "Just to be is a blessing." Hang on to that as all struggle with this new precious child.

1 comment

by bmupton 02 May 2013

Thank you very much.

So sorry to hear this news. I am sure she is devasted now and can't see the light through the trees. Jan is the person I would recommend to talk to as she has experience working with families. She is an amazing person and can help. For now, I say a prayer for your sister's daughter and granddaughter and the rest of the family.

1 comment

by bmupton 02 May 2013

Thank you so very much....

05-02-2013 Might I suggest that someone close to the family go on line and found out more about the issue and find a support group. Since it is rare there may not be support locally but there should be something online. She might feel alone with the problem, sometimes finding others to talk with helps. She might also try to find a support group locally for parents with children of life long medical issues. Sorry, it is the counselor in me--I have seen too many people that suffer alone.

2 comments

by bmupton 02 May 2013

I have done nothing today but research....I did enroll in a sight that is for families and am awaiting their approval. I am trying to be as encouraging as I can and have given her many websites. There are currently clinical trials at John's Hopkins and a hospital in Texas, I forget the name. We just need a miracle. Becky

by hightechgrammy 05 May 2013

Becky, if I knew the name of the condition, I might be able to find resources.... It really helps to know you are not alone. And remember Miracles do happen - I know for sure! Hugs, Jan

I am so sorry. I know it is always so hard to learn that all is not as a parent hoped for their precious baby. I will be praying for strength and comfort for Our lord's Will for all.

1 comment

by bmupton 02 May 2013

Thanks so much....everyone's words of encouragement have helped me....I just hope I can help her and the family....they are very precious people....all of them....Becky

Becky, of course we will pray. Please tell your sister that there is always hope, and for now things look really sad, and full of despair. I don't know if you know this, but I have a 25 year old son with rare genetic syndromes, actually two of them. I have helped families with these syndromes for many many years. I would love to talk with your sister because I know I can help her. Special children can enrich the lives of their families beyond anything we can imagine! There are amazing things medicine can do now for them. I will be very happy to help them through this. Please have them contact me. I'll send to you PM my email. Love and hugs, prayers for your sister and this baby and her family. They are not alone. Jan

I have you and your family in my prayers. I know from personal experience that God and his angels watch over us and help us
...bearmom

1 comment

by bmupton 02 May 2013

thank you all so much.