by sebsews 15 Jan 2023

I have not been on Cute much due to being a care

giver for my sister Sandy. She has been having lots of setbacks since moving to assisted living. August she broke her shoulder, had shoulder replacement surgery. She is still not using her arm like she should. Then September and October dementia declined. November she fell twice, got covid, went to hospital, went to rehab, now is back at assisted living. Thanksgiving the assisted living opened back up for visitors. I went to pick her up to go out to eat but she could not walk or communicate also paranoia. She was sent to hospital. Come to find out, this was the results of over medicating. Too many medications for depression, paranoid, and dementia. Her PCP and I went round and round. Once off all meds she went through withdrawal, horrible to see her body shaking. She is now beginning to walk and talk. Getting PT/OT 3-4 times week.
Since June I have been working on her house getting it ready to sell. What a hoarder she was! She had done no maintenance or repairs for 25 years. I had myself, friends, my sons and lots of repair persons to schedule. Finally done and listed with the greatest real estate person! Within a week an offer was made. Still need to do a few things, hopefully closing later this month. One thing off my shoulders! I worry so much about her and try to do the best for her.
Now for me. Last spring, I was diagnosed with Rheumatoid Arthritis, mostly in my hands. Embroidery and sewing is very difficult. November, I got Covid, probably from Sandy. Took me 2 weeks to recover. My eyesight got bad during the Covid time. I went to eye specialist, she sent me to Retina specialist, because I now have age related Macular Degeneration both eyes. Retina specialist gave me shots in both eyes. I will go every month for more shots in both eyes. This new diagnosis has been devastating to me. I worry about so much.
My back and hip are bothering me again and will get epidural injection next month.
So that's my way of life for now.
This week Sandy fell again and off to the hospital. CT scan says small crack in neck vertebrae so now she has a neck brace, causing much confusion and more pain to her. Neurosurgeon will see her, and I will discuss getting another better fitting neck brace.
I just wanted you to know what has been going on. I think of you and all cuties often.
As always, Sending hugs, love and flowers, Suzanna

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by basketkase 24 Jan 2023

Goodness Suzanna, that is so much to have to get through.......am sure it is as exhausting as it sounds......will keep you and your sis in my prayers and love to you both......

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by peafarm 20 Jan 2023

Wow, you have had a lot to deal with. Some of it sounds like my husband's sister's situation back a yr or so ago. She fell, shattered a shoulder and at the same time testing for esophageal cancer the Hospice, then her son died and my son dealing with assisted living for the husband. My son put in Will, POA etc and we are far away in another state. Then the husband died and my son is dealing with all this from our state, thanks to a judge granting that. Then my son has had Covid twice and that RSV infection all since summer. Now my daughter and I are going thru some scary times. I will write more about that in another episode of 'personals'. I know exactly what you are going thru and all the misery of it all and the worry. My prayers go out to you and family.

1 comment
sebsews by sebsews 21 Jan 2023

Thank you! Sorry for all your situations. Seem like it is one thing after another. Sending prayers to you and your family too.

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by pennifold 19 Jan 2023

Hi Suzanna, I know what you are going through and thanks for writing to me privately. My heart goes out to you and the family. Keep strong and know that I am praying for you my friend. God bless you, sending lots of hugs, love and light. Love Chris

1 comment
sebsews by sebsews 21 Jan 2023

Thank you, Chris! As we go through this, I think we do get stronger. I thank you for your continued support and I as well support you. I am also grateful for this Cute site and the friendship and support given to me. Love, hugs and flowers to all, Suzanna

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by dlonnahawkins 18 Jan 2023

Suzanna, you have had your hands full, and more than you should have to go through at one time.
I was diagnosed with AMD two or three years ago. My Retina specialist is great, and I do not have to go to him too often for the injections. I do have a strange type of AMD, for it is off center. I did not even notice that I had it. But I also have a great Ophthalmologist. He found it, called the doctor, got me an appointment the very next day, and we started treatment quickly. Keep your spirits up, for I am sure things will get better.
Hoping that your challenges become less, and things get better for you and your sister.
Cyber Hugs

1 comment
sebsews by sebsews 21 Jan 2023

Thank you! I will need to go to specialist once a month for I don't know how long. I do see a slight difference after the first shot. I go Tuesday for a second series. My sister is back at assisted living and resting. Thanks again for your comment.

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by dragonflyer 15 Jan 2023

Love and light coming your way, Suzanna, as you and your family persevere all of your challenges...

1 comment
sebsews by sebsews 16 Jan 2023

Thank you for your beautiful comment.

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by dailylaundry 15 Jan 2023

Suzanna, I am so sorry for all you are going through. Please know I am sending prayers your way. You have too much on your plate. Please keep us updated on how you and your sister are doing! Loads of hugs and love, Laura

1 comment
sebsews by sebsews 16 Jan 2023

Thank you! Yes, lots to do, hopefully all will work out. Thank you for prayers. I will keep you updated.

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by 02kar Moderator 15 Jan 2023

My heart grieves for you and your sister. What a difficult time you have been through, and we know it will continue. Please know we are here for you with prayers and hugs. Be sure you take care of yourself. You have 2 difficult diagnoses of your own. Keep us up to date so we know how you and your sister are doing.

1 comment
sebsews by sebsews 15 Jan 2023

Thank you, Karen! Yes, it will continue and as I was speaking to the nurse today, she said Sandy should be in memory care. I know this will be the next step. I am trying to do some coasters for a friend but seems like it takes me longer now days. I will keep you updated. I appreciate your prayers and support.

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by sdrise 15 Jan 2023

Susanna prayers are coming your way...Being a care taker is very difficult. I know first hand. We are here to listen and pray for you and the family HUGS Suzanne

1 comment
sebsews by sebsews 15 Jan 2023

Thank you! I am thankful you and Cuties for support and for following me on this sad situation.

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by graceandham 15 Jan 2023

You have had a series of devastating blows and I am proud of you for the way you have persisted and pushed forward to do the very best for your sister and yourself. At some point the tiredness take over and the pity party begins so just be ready! It is discouraging to be a caretaker while going through issues yourself. Thank God your sister has you for her advocate. Medicine can only go so far, but love adds another healing aspect.

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sebsews by sebsews 15 Jan 2023

Thank you! After visiting a long visit with her today, it was time for me to go. She started again the pity me thing. Breaks my heart. I will continue to help her in any way I can. I sometimes sit a tear up for her, reminiscing she had done so much in her life and now she has nothing. I will not let her down and I will continue to show her love and that I care.

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by asterixsew Moderator edited 15 Jan 2023

Suzanna my heart goes out to you. I will add more later

3 comments
sebsews by sebsews 15 Jan 2023

Thank you! I look forward to your post.

asterixsew by asterixsew 15 Jan 2023

Apologies for the short comment, I had popped into Cute for a look and got called away. Your sisters health problems sound difficult enough for you with out the added problems with yourself. Covid isnt nice and does take a while to recover and can cause extra problems along the way. I hope that you are able to get back to some sewing and that the many injections that you are having are not too uncomfortable. Take care and pop in when you are able

sebsews by sebsews 16 Jan 2023

Thank you! Not sure if the eye problem is related to Covid but I had no serious eye problem prior to Covid. The shots are not painful, eyes are numbed up before the shots. I am trying to do the best for my sister, sometimes it feels like a losing battle.

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